The Tri-State Brain Aneurysm Support Group, Inc. was founded in 2002 to serve the families of brain aneurysm survivors in Northern Kentucky, Southern Ohio, and Southeastern Indiana. At the time it was one of the earliest such organizations for brain aneurysm survivors and caregivers in the U.S., and remains one of the more active.
The core function of our non-profit organization is to provide information and a comfortable, welcoming environment for those affected by a brain aneurysm. Historically we have done this through monthly meetings, social events, and an annual symposium featuring presentations by neurosurgeons, researchers, health care professionals and survivors. In recent years our members have participated in research studies conducted at the University of Cincinnati.
Largely because of what that and other research has shown, and because of technological advances in diagnosing and treating aneurysms before they rupture, we have launched efforts to increase public awareness of brain aneurysm and the importance of screening for families that might be at risk.
A brain aneurysm is a thin, weak spot on the wall of a brain artery. Over time, as blood flow within the artery pounds against the thinned portion of the wall, it wears down and aneurysms form. As the artery wall becomes gradually thinner from the dilation, the blood flow causes the weakened wall to swell outward. This pressure may cause the aneurysm to rupture and allow blood to escape into the space around the brain.
According to the national Brain Aneurysm Foundation:
- An estimated 6 million people in the United States have an unruptured brain aneurysm, or 1 in 50 people.
- The annual rate of rupture is approximately 8 – 10 per 100,000 people. In other words, about 30,000 people in the United States suffer a brain aneurysm rupture annually.
- Ruptured brain aneurysms are fatal in about 40% of cases. Of those who survive, about 66% suffer some permanent neurological deficit.
- Brain aneurysms are most prevalent in people ages 35 – 60, but can occur in children as well. The median age when aneurysmal hemorrhagic stroke occurs is 50 years old and there are typically no warning signs. Most aneurysms develop after the age of 40.
- Most aneurysms are small, about 1/8 inch to nearly one inch, and an estimated 50 to 80 percent of all aneurysms do not rupture during the course of a person’s lifetime.
- Women, more than men, suffer from brain aneurysms at a ratio of 3:2.
- African-Americans are at twice the rate of rupture of whites (a 2.1:1 ratio)
- Hispanics are at nearly twice the rate of rupture of whites (a 1.67:1 ratio)
- 10 – 15% of patients diagnosed with a brain aneurysm will harbor more than one aneurysm
Research has also shown a genetic link in the propensity for aneurysm formation, and that factors such as cigarette smoking and high blood pressure can significantly increase the risk that an aneurysm will rupture.
The Tri-State Brain Aneurysm Support Group, Inc. welcomes new members, including the families of those who have lost a loved one to brain aneurysm. Please visit the Events and Meetings pages on this website for more information about our activities, and become a "friend" on our Facebook page to keep up with day-to-day updates.
2017 Tri-State Brain Aneurysm Steering Committee
President Roberta Holden (Mayfield Brain & Spine)
Vice-President Emily Liu (Caregiver)
Secretary Karen Oehm (Survivor)
Treasurer Robert White (Survivor)
Steering Committee Members
John Abraham (Survivor)
Bob Kussmaul (Survivor)
Marla McCarthy (Survivor)
Lorraine McGhee (Survivor)
Dawn Stonebraker (Survivor)
Charlene Taylor (Survivor)
Pat Varney (Survivor)
Glenn Varney (Caregiver)
Rob Zoellner (Mayfield Brain & Spine)
Dr. Mario Zuccarello (Mayfield Brain & Spine)